In talking to others about chronic pain and chronic illness, there is one theme in particular that keeps coming up. The idea that being not believed is a huge part of the problem. Having dealt with both mental illness and chronic pain over the last few years, I’m all down with the invisible illness speak. I’m on my way to gaining a medical degree through experience hours alone. It can be lonely, at times, being in this bubble where everything seems alright when it isn’t. Not being believed, or being told that it’s in my head, has been a big part of that.
A picture tells 1000 words, right? With some topics that can be hard to discuss properly, pictures and memes can do a lot of the talking. This is definitely something I’ve found with chronic pain and mental illness – it’s easier to laugh from the outside than talk from the inside. I follow a lot of other Chronic Illness warriors on social media, Instagram in particular. Their sharing of memes and funny pictures, as well as inspiring quotes, keeps me going on rough days. I share them with fellow pain sufferer friends. As well as telling 1000 words, they open up conversation lines in ways that we normally can’t. So I’ve grouped together a few to give as examples of memes that describe life with chronic pain. If you’re a sufferer, or love someone who is, then you may relate.
The word “Pacing” has come to mean something different to me since being introduced to the Chronic Pain community. Prior to that, I had linked it very much so with parenting – pacing up and down corridors waiting for news, pacing up and down the house with a crying infant. In the chronic pain/illness world however, pacing is a coping strategy, basically “to pace yourself”. It’s a skill that can be quite difficult to get the hang of. In essence, you find out what your limit is, and then figure out your schedule to what you can do.
And then parenting comes along. Boom. My toddler DOES NOT CARE for pacing. Parenting and pacing are not the easiest of combinations to master.
I’ve suffered with chronic pain in my back for the last two years, since an incident during my pregnancy with E. It has had a large effect on my life and has made me look at how I do things in a different way. Having read “Pain Free Living” a few months back, I was introduced to the existence of Chronic Pain Ireland, a charity which helps people like me, who are living with chronic pain, providing supports.
I’ve written recently about suffering with chronic pain. I’ve done so for two years, since a few months into my pregnancy, and have experienced many ups and downs with it. There have been many visits to many different doctors, trying different medications, different physical therapies and many mornings waking up and hoping “Today Is The Day” (As of yet, It’s never been the day). Pain is a constant in my life, which I’m working on reducing alongside some incredible medical professionals, but one that I try my hardest not to get me down.
While listening to podcasts while out walking one day recently, I came across an interview which my Dad had recommended I listen to, Sean Moncrieff interviewing the TV Presenter and author Andrea Hayes. She spoke about her life living with chronic pain, the feelings it instilled in her, different things she had done to cope. While her pain is from a different source, listening to her I related so much to the interview and found myself sending it to other friends who have suffered with chronic illness – all of whom reacted the same as me “I’m not cracking up, it’s not just me, she’s telling our story”. So, when I got home I downloaded a copy of the book “Pain Free Life: My Journey To Wellness” and was excited to get stuck in.
It isn’t something I write about often, my pain. Mostly because I don’t want to make this blog about my parenting journey into an eternal journal of whinging, but also in a slight denial aspect that if I don’t say it exists then it might go away any day now. That’s not been a successful venture yet, so I’m led to wonder what can be the harm of being honest in this, my little spot of the Internet. For the past two years, I have been parenting with chronic pain.