The Irish Health System is a flawed system, there is no empirical evidence at all to show us otherwise. We have seen a medley of errors causing pain and suffering in numerous ways over the past few years. However, sometimes, we do SOMETHING right, and one of those things is the Drug Payment Scheme. Is it perfect? Not at all, but it’s definitely something that everyone should sign up for because it may save you from financial woe in the future.
Here’s a bit of a look into what’s involved, who is entitled to it and how to get yourself sorted out with the Drug Payment Scheme. Hopefully it is something you will never need to use (the majority of users don’t hit the cap each month) but if you’ve got a house of kids, a chronically ill family member or simply want to prepare for the worst, then make sure to get this card into your purse.
For the last six weeks, I’ve been taking a drug called Humira which was meant to help get rid of my chronic pain issues. The general gist of how it was to do that was that it would tell my immune system to cop onto itself, stop fighting itself and calm down the inflammation which my doctors think is causing all the pain to kick off. I was so hopeful that it would work. Living in pain all day every day has been my life for the last five years and it’s bloody hard, so I have tried MANY things to get rid of it. But sadly, this time was not meant to be, Humira didn’t work for me. Here is my experience with the drug and what we are planning to try next in the hopes of getting me pain-free (or at least able to function).
As someone who lives with chronic pain and chronic illness, I’ve got a fair bit of downtime. I’m currently out of work as managing full time employment when your pelvis screams at you for sitting down isn’t exactly the easiest proposition. However, the child is in Montessori all day, so I have had to find something to keep my mind busy or I’ll go completely demented (there is only so much The Good Wife re-runs a woman can manage). And so, my latest creation is this: The Chronic Pain/Chronic Illness Alphabet – an A-Z guide to Chronic Life. Hopefully it will ring a bell with others who are living with chronic conditions, and bring some more understanding to those lucky enough to not interact with it.
This post has taken me a long time to write. I’ve previously written about my struggles with mental health, and with my journey through life with chronic pain, and in my head this feels like it should be an extension of it. This post was started in April and has been living in my drafts ever since – down to things changing, trying to do more research, trying to wait until I had an answer. And so, here I am, in mid July, feeling like we’ve not really moved on that much, living with life with no diagnosis to show for it. (more…)
As we come up to the referendum which will decide whether or not the 8th Amendment of Bunreacht na hEireann is repealed, there is a whole lot of information being thrown our way. In 1597, Francis Bacon wrote “Knowledge itself is power”, which has been interpreted as saying information is power. However, in the current climate of fake news and scaremongering, the debate as to whether to allow women to decide for themselves what happens to their bodies or to leave it up to the state rages on. What is clear is that the funding for the campaign is unequal, with the conservative leave-it-as-it-is side being able to fund a far larger poster and leafleting campaign than the grassroots activism seen on the Repeal side. With increased funds comes the increased capacity to reach more people – and so it is necessary for those on the side of change to ensure that the truth does out, that these myths and lies and fake statistics are called out for what they are. (more…)
Cervical Cancer. It’s one of those big scary C’s that we don’t talk enough about. The words “Mortality rate” and “most common cancer” are bandied about, but as a society, we seem to stick our fingers in our ears and hum. Much has been done on this in recent years, but we’ve a long way to go.
A picture tells 1000 words, right? With some topics that can be hard to discuss properly, pictures and memes can do a lot of the talking. This is definitely something I’ve found with chronic pain and mental illness – it’s easier to laugh from the outside than talk from the inside. I follow a lot of other Chronic Illness warriors on social media, Instagram in particular. Their sharing of memes and funny pictures, as well as inspiring quotes, keeps me going on rough days. I share them with fellow pain sufferer friends. As well as telling 1000 words, they open up conversation lines in ways that we normally can’t. So I’ve grouped together a few to give as examples of memes that describe life with chronic pain. If you’re a sufferer, or love someone who is, then you may relate.
The word “Pacing” has come to mean something different to me since being introduced to the Chronic Pain community. Prior to that, I had linked it very much so with parenting – pacing up and down corridors waiting for news, pacing up and down the house with a crying infant. In the chronic pain/illness world however, pacing is a coping strategy, basically “to pace yourself”. It’s a skill that can be quite difficult to get the hang of. In essence, you find out what your limit is, and then figure out your schedule to what you can do.
And then parenting comes along. Boom. My toddler DOES NOT CARE for pacing. Parenting and pacing are not the easiest of combinations to master.
I’ve suffered with chronic pain in my back for the last two years, since an incident during my pregnancy with Eliott. It has had a large effect on my life and has made me look at how I do things in a different way. Having read “Pain Free Living” a few months back, I was introduced to the existence of Chronic Pain Ireland, a charity which helps people like me, who are living with chronic pain, providing supports.
When I was pregnant, I saw a lot of my doctors thanks to my blood pressure and I not getting along. In the later stages of my pregnancy, the words “pre-eclampsia” were bandied about a bit. It was discussed at length as to whether or not specific results that day indicated if I did or didn’t have it, or if it seemed likely I would. Nobody sounded very happy about the possibility so I for sure knew it wasn’t a good thing. However, there was little enough information being sent my way about it which led me to googling what it could possibly mean.
For a pregnant lady whose blood pressure was already high, googling may not have been the best idea. There’s a lot of information out there online. In particular, information in well meaning forums where pregnant women and mothers discuss different symptoms and features of pregnancy, birth and beyond. A lot of this can be misleading, or more frightening than it should be.
So, for the sake of my past self who was terrified of what this diagnosis could mean for me and my baby (thank you Downton Abbey), here is a No Nonsense Intro to Pre-Eclampsia – hopefully if you’re reading this due to a similar Google search, it will allay some of your fears. While it is a very serious condition which can be very dangerous if not managed correctly, it is also key to keep in mind that when it is caught in time, which is the majority of cases in modern Ireland, mother and baby get through it healthily and happily.
I came across this linky blog post from Ojo’s World, which she is running through the month of June, and found it to be a little ray of sunshine. I got inspired to stop looking at whats going wrong on a day to day basis and take stock of everything that is going right, and everything which is making me smile. (more…)